I have Stage 4 chronic hepatitis C with cirrhosis of the liver.
How did I get this Hep C virus? This is a great question that I wish I could answer!
I have never shot drugs, and I am not an alcoholic (I used to drink a few beers now and then, but nothing heavy), no tattoos, or do anything that one would expect to get hepatitis C. I have done a lot of research and many of the people who have Hepatitis C do not know where they got it from.
How did I find out that I have the Hep C virus? Back in June I had to go to the hospital for getting bitten by bed bugs, but while in the hospital the doctors were trying to figure out why I was so fatigued. They took blood, mainly for the bed bug infection, but never tested for Hepatitis C so while in the hospital it was not discovered. The doctors never could tell me why I am so tired when I was hospitalized. I would argue that if they tested the blood for everything, they would have found out, and I might not be in the situation that I am today, but that is the past, and I am not going to deal on the past!
Since getting out of the hospital I have been going to the free clinic at Queen’s hospital in Honolulu (I have no medical insurance), first for follow ups, but then to find why I am so tired, and weak all the time. I will hand it to the original doctor I was seeing there, as he thought that I might have hepatitis C, at first I thought that he was joking, as I thought there is no way! it turns out that he as right. This did take 3 months to find out, so the medical attention that you get in Hawaii is extremely slow!!
After finding out that I did test positive for Hepatitis C, they had me take many, many blood tests. Then I took a liver biopsy and found out that my Hepatitis C is chronic at stage 4 with cirrhosis. I desperately need treatment as soon as possible so my liver does not fail!
This is the part where I know I should leave Hawaii!
I just took at ultrasound of my liver last Wednesday, only to find out that I will not get a reading to find the results until April!! Are you kidding me, 2 months to find the results of a ultrasound, this is just crazy, why so long? This should happen the next day, or maybe a week if the doctors are really busy, but two months? When I do go to the doctor in April, what will be the outcome of the ultrasound, will I need more tests, what is their plan?
I don’t understand what the holdup is, as back in January the liver specialist told me that I would need to go to the special clinic at the Hawaii Medical Center to start treatment,and that I should really consider taking part in a clinical trial of new medicine being tested. This sounds really bad to me.
I have not heard from the Hawaii Medical Center, and I think that it will be a very long time until I do. If I stay in hawaii I am afraid that my liver will fail waiting on the Hawaiian bureaucracy.I am wondering if I get the proper treatment that I need at a mainland hospital where I am sure will have their act together much more than here in Hawaii!
It is sad that a city like Honolulu, can not be as good in business or medicine as the cites on the mainland. There is no reason why I should have to leave Hawaii, but I guess if I ever talked to anybody who became very ill, they might have had to do the same thing, leave the state of die waiting for treatment!
I am sad as Hawaii Flash User Group that I started last year is going great! I am really proud of everything that I have done with the group. A year ago I started the group,and people thought that I was crazy saying that it would never work, but today there are over 40 members and I think that it is a great flash user group.
It is a shame that I could not get the interest of the flash design community, the university programs teaching graphic design, New Media Arts,and game design. I always hear that nobody will come to Hawaii and that the opportunities are not here, but until people start to come together for the greater good of the community it will never happen!
Also, because of me leaving I will not be pursing the flash camp for Honolulu as well. I think that this conference would have been great for Hawaii, maybe somebody else will plan to have one here!
Now I would love to stay in Hawaii, it has been my home for about 15 years, but unless there is a complete turn around and the doctors get me the medical attention that I need, I will be leaving very, very soon!
I will have to decided if I will try to make the hfug group to a on-line flash group, or just forget about it all together, my health is more important than running a flash user group no matter how much I love doing it!